Support Group
The support group met on Wednesday night and went really well. We had 16 people turn out, so not bad at all. The Exubera rep did a great job and I got to meet one of the other Sioux County CDEs. At the end of the meeting we had an open topic question time. One of the things that I learned from the group is that I'd better have snacks next time! LOL! Apparently that is a highlight of the meetings. I was also informed that some other meetings give away door prizes. So I am trying to brainstorm ideas for a door prize in November. A free Turkey? Lol- One thing I thought of was a massage or some other "self-pampering" type of treat since we do deserve it for all of the time we spend trying to keep our bodies healthy! I am pretty sure I will talk about depression and the correlation to diabetes and combine preventing diabetes burnout with that. Perfect for the Holidays and gloomy weather that comes along with them. When I threw the topic suggestion out to the group, I did get some positive feedback so I think it would be very beneficial.
I have decided I should advertise that we are serving low-carb and healthy holiday treats-lol- that should bring the attendees in, of course we will more than likely have poor driving conditions to contend with.
I also must apologize for putting the pump training on the back burner. I have had such a busy summer that I have spent virtually no time on that in the past several weeks. I promise to put that up on the list of priorities! I had been doing that at home but after I get the diabetes stats entered for the quarter (in the next few work days) I am going to bring the manual in to work and do it there. Too many distractions at home. (:
I also wanted to report I have been less than thrilled with my Dexcom CGMS lately. It has been SO out of whack and inaccurate. I know they say it is not the number you go by, but the trend...but the number was always spot-on to my monitor at first, and this holds true for most of the Dexcom users I know. I have heard from more than one CGMer that the longer they had it the less accurate it become ): I am seriously considering looking into the Minimed System since it would be right there in my pump if I were to upgrade. I just know that I was getting over 2 weeks out of each sensor from Dexcom and when it is coming out of my own pocket (insurance companies ARE starting to pay for this more often though), and the results are accurate, why wouldn't I keep it in longer as long as the site was comfortable. More often than not it was a tape failure that would lead me to discontinue the site. If I am training people on the Minimed it would be helpful to use the latest of the Paradigm series. Of course Cozmore and Animas have their selling points too. I don't want to limit my patients, but we'll see how realistic it would be to do all 3. There are others but those 3 are the most common. I kind of want to hold out for an upgrade as I am hoping SOMEONE out there is working on a double reservoir delivery system for Insulin AND Amylin. How perfect would that be? I know from experience that they are okay when infused to the same site, but I suppose the trials on that will be a while. Not sure if I can spring for a second pump (obviously my insurance wouldn't go for it) for just the Amylin (Symlin) though I would love to try it out- Can you imagine wearing TWO pumps? (If you wear one now?) Sheesh! I can hardly find a good "hiding spot" for one-lol-
Well, time to get going. I am writing from home and need to get ready to go in to the office-
Blessings on your day!
Posted by Cari Roorda
Un-tethered Regimen and more...
Wow...It has been a while since I posted anything here. Sorry! I have been very busy with visitors from out-of-state and just recently, my sister moved here! It has been a busy time for my family but that's a good thing.
Lately I had been noticing my pump sites going bad at an increasingly fast rate. Lately I can't even get 24 hours out of them. I have tried both the teflon and steel sets ( various types of both ) with no improvement. Between that and trying Symlin (again!- after my little break)and the spikes with that, I have been really approaching burn-out. Oh, and did I mention my Dexcom CGMS has been acting up too? Sometimes it feels like insanity with all of these devices...So I talked my doctor into letting me take a little "pump holiday" to give my favorite sites a rest. My -non-pumping Diabetes regimen? Lantus- (which I was kind of looking forward to trying since that was out after I started on the pump so I never did get to try it) and of course a rapid acting insulin analog. I also remembered reading that Novolog tends to be a little better in the pumps as it is "cleaner" than Humalog, so I asked if I could try that in addition to the Lantus that way if I needed to go back to the pump I had another option.
16 hours into the pumping "vaca", I was soooo ready for my pump again!! I really missed being connected to bolus whenever without having to haul out a syringe or pen. I went online for some insight into my little break and found an article that Dr. Steve Edelman wrote describing an "Un-tethered Regimen" which you can read about here:
http://www.childrenwithdiabetes.com/clinic/untethered.htm
Basically, the pumper takes Lantus in addition to using the pump- just takes less of the basal insulin with the pump and covers that with Lantus, but still has the convenience and precision of the pump (bolusing options, increasing basals for dawn phenomenon over JUST the few hour period that is the culprit of the problem for most people). I did this for a few days and it worked AWESOME- Honestly the best BGs I have seen in a long time- they looked so "textbook" and that is so not me! I felt amazing too. More "even". Then I decided to try to introduce the Symlin again since things were going so well. That immediately pushed my baseline to 160s-170s! Yikes! (I try to keep it around 90-100 most of the time) However, I am thinking it was a bad site, because despite many futile bolusing attempts, by BG wouldn't budge. Eventually an insulin injection did bring me back down.
Anyway, I've decided to wait until I knew for sure if I am just having bad luck with sites and need to stick (pun intended!) with injections for a while before trying Symlin again-
I will say I don't think it is the material of the site but the actual continuous infusion of insulin that is irritating the tissues because I've had my i-port ( www.pattonmd.com) in for longer than the site now (both went in on Monday around noon)and still no problems. I could've just hit a lucky site too, hard to say. The i-port has a 6mm teflon cannula that looks very similar to the Minimed Quick-sets and is about the same size. It goes sub-Q (sub-cutaneous) jsut like an infusion set and has to be changed at least every 72 hours, but you can inject right into the little hub and no more than 1 stick every 3 days! The needle gauge is 27G as opposed to the 31G of the new insulin syringes, so much bigger, but less often. You can put them anywhere you would inject insulin. I heard about them on the website I host and thought they sounded like a great idea and decided it would be a good thing if I were to try them to have some practical advice for any patients who may be interested. So far I have no irritation like I did with the pump sites, so that is why I suspect the sites problems have more to do with continuous insulin infusion (albeit a tiny amount) than with reaction to the materials that the infusion sets are made of.
Well, I am running out of room but wanted to give an update on my quest for perfect control-lol- Keep checking back for updates- I suspect my pump break won't last long and I may even selectively pump for occasions where I know it will be very helpful, but for now I welcome the break with open arms!
Posted by Cari Roorda
Back to pumping...
Happy Birthday to ME! It is my 32nd birthday today. Also, I have been living with "the big D" for about 15 1/2 years now. So what am I doing for my "big day"? Well, of course I am going in to the office. (:
I didn't sleep the greatest. My CGMS kept alarming "Low BG" and then I would get up and have a snack only to have it happen again in a couple of hours. Looks like I need to tweak my basals even more. I had increased them because of being sick and the lovely resistance that comes along with that.
So yesterday I put my pump back on. For the first time in MONTHS it didn't hurt to put in! I think giving my sites that little break- albeit a short one- did make a difference. I am still doing the Lantus (aka the un-tethered regimen) as I love the freedom that comes with that. In fact I encourage anyone on a pump to try it! I love being able to disconnect for a shower and not worry about getting the pump right back on, or just connecting to bolus if I have a fitted outfit on that doesn't have a pump friendly hiding spot.
One of my friend's daughter is type 1 and on the pump. While I was at their house this past weekend, my friend was telling me how hard it has been for her to deal with the pump stuff with the busy summer, swimming, etc. Also she had taken a nap the week before and didn't realize her pump wasn't connected or was suspended, whatever it was, she didn't have any insulin delivery for a few hours and then woke up high and feeling lousy. This is why I love having the Lantus "safety net". I suppose the disadvantage is that you can't totally suspend the pump for exercise or illness where you can't eat and are low, but adjustments can be made for those circumstances. I may have more to offer in the way of practical advice once I am able to start exercising again (should be this week as I finally feel MUCH better!), but everyone is so individual. I suspect since I can set my basals at about 50% while I exercise, I will be able to do 50% of my basal dose as Lantus- right now I am closer to 90% and just had the pump to kick in for Dawn Phenomenon (DP)and a few times of the day when I need a slight increase in my basal rate.
If you are in the area and are considering a pump- CALL ME and I would love to talk to you about it! Also there are quarterly NW Iowa pump support groups hosted by Judy Hauswald ( Sioux Center's diabetes educator) where you can go and find out more about the pump and meet other pumpers. I will post the dates when I get them.
I have access to Minimed, Animas, and Cozmore pumps and will soon have even more. I am not certified YET to be a pump trainer but am working on it. I need some official pump starts before they will call me "Certified". But honestly I can't think of anything I wouldn't know how to deal with after using a pump myself for 7 1/2 years.
Well, enjoy your week...and the rest of the summer that has gone by WAY too fast!
Posted by Cari Roorda
